A North Carolina Family is Celebrating Blood Donors and Organ Donors on Their Son’s One-Year Double Lung Transplantaversary

January 2, 2020

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January is designated as National Blood Donor Month by The American Red Cross. During this month, all are encouraged to give blood, which is typically in short

COTA Patient Charlton Buchanan Double Lung Transplant Recipient

supply at this time of the year due to the holidays and an increase in communicable illnesses. A COTA family in North Carolina will be forever grateful to the blood donors whose blood was used throughout their son’s transplant journey and his life-saving transplant that occurred last year on January 16

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Charla and Trevor Buchanan of Robbinsville, North Carolina, are stepping into 2020 hoping and praying this is a year of no medical emergencies, no surgeries, no complications and no setbacks for their son, Charlton, who will be celebrating his 26

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birthday in September — a dream come true for this family.

According to Charla, “For 24 years we have been on a Cystic Fibrosis (CF) journey … but more than that, we have been on a faith journey. Our son, Charlton, was born with CF, which is a progressive, genetic disease that causes persistent lung infections and an overall inability to thrive. From his premature birth until very recently, Charlton’s life has consisted of daily physical and respiratory therapy, medications, quarterly clinic visits to UNC Medical Center in Chapel Hill and annual (sometimes bi-annual) hospital stays. Although his treatment regimen has been incredibly time consuming (2-4 hours daily), Charlton seldom complained as a little boy … as a teenager … or as a young adult. He has always had a positive attitude and has lived a full and active life. In fact, many people never knew he was battling a challenging and life-threatening disease.”

Cystic Fibrosis (CF) is a genetic disorder that primarily affects the lungs, but also the pancreas, liver, kidneys and intestines. Long-term issues include difficulty breathing and coughing up mucus as a result of frequent lung infections. CF is an inherited disease, and while there is promising research, there is no known cure.

Even with a multitude of CF-related challenges, Charlton attended and graduated from Robbinsville (NC) High School. He then attended Western Carolina University in Cullowhee, North Carolina, and received a degree in computer information systems on May 12, 2018. Charlton was hired by the Graham County (NC) government to work in its Information Technology Department. His life definitely seemed to be moving in the right direction. His friends and family were thrilled for this young man who simply was not going to let anything stand in his way … including his battle with Cystic Fibrosis.

However, 2018 proved to be one of the hardest years of Charlton’s life due to nine hospitalizations. His lung function rapidly declined, and with each hospital stay, increasing amounts of oxygen were required. During a challenging two-week hospital stay in December, Charlton’s transplant team decided it was time to list Charlton for a double lung transplant while he was still healthy enough to thrive and before there was further lung decline. Charla, Trevor and many other family members and friends knew this would one day be his reality, but the news took everyone by surprise.

Charlton was officially listed for new lungs on January 9, 2019. One week later on January 16

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, the Buchanan family received ‘the call’ telling them lungs were available. Charla posted this update on Facebook, “Transplant day has been long for everyone. We are all excited and want to hear good news, but the only news so far is that the surgery is going well and it will still be a long wait. On January 17

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she updated, “Charlton is out of surgery and in recovery. He woke up easily, was taken off the ventilator, took his first breath with lungs that are NOT diseased with Cystic Fibrosis — and never will be. To say we are amazed, awed and blown away is an understatement.”

Charlton’s post-transplant recovery was nothing less than amazing. On the second day after his double lung transplant, Charlton was moved to the stepdown unit and walked five laps. On day three post transplant he was able to eat real food. Eight days after his transplant, Charlton was discharged to medical housing close to the transplant center. According to Charla, this recovery timeline tied for the shortest UNC Medical Center record for a double lung transplant patient.

In the midst of this whirlwind a transplant social worker at UNC Medical Center had introduced the Children’s Organ Transplant Association (COTA) to the Buchanans and suggested they might want to consider fundraising for the transplant-related medical costs they would be facing. On January 11

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, Charla called COTA to learn more and to ask many good questions about how COTA might be able to help. On January 29

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, Charla and Trevor returned the paperwork and officially became part of the COTA Family.

The Children’s Organ Transplant Association (COTA) works with individuals of any age with single gene disorders, such as Cystic Fibrosis, Polycystic Kidney Disease and Sickle Cell Anemia. COTA uniquely understands that parents who care for a child or young adult before, during and after a life-saving transplant have enough to deal with, so COTA’s model shifts the responsibility for fundraising to a community team of trained volunteers. Another plus? COTA funds are available for a lifetime. On February 22

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, a COTA fundraising specialist trained volunteers in Robbinsville for the COTA for Team Charlton campaign and walked the group of attendees through the entire COTA fundraising process. This group of family members and friends quickly got to work organizing fundraisers for COTA to help with mounting transplant-related expenses.

According to Charla, “From the moment we reached out to COTA, we were set at ease. Every staff member we spoke to was so reassuring and helpful, patiently answering the multitude of questions and listening intently to our concerns. Charlton received his transplant so quickly that we had not yet had time to officially become part of COTA. When we reached out a week after his transplant … our minds in a whirlwind … they made the process so easy. Very soon after that we began receiving much-needed support and our team of volunteers began fundraising with COTA’s guidance and support.”

“As our COTA team of volunteers began to raise funds in honor of Charlton, we were relieved to share that COTA is a 501(c)3 charity so all contributions to COTA are tax deductible to the fullest extent of the law, and COTA funds are available for a lifetime,” Charla said. “Our volunteers were given a fundraising website at no charge and I used the COTA site to blog medical updates to our friends and family.”

Charlton remained in the Chapel Hill area, some 315 miles from their home, for three months. On April 10, 2019, Charlton was released to return home to Robbinsville. Charla blogged on the Team Charlton COTA website, “WE ARE HOME!!! Twelve weeks to the day after his transplant. Charlton even went back to work today. He feels great and has been hiking and enjoying time with friends. His lung function numbers continue to climb higher than they have been in more than two years with his oxygen levels staying at 100%.”

Recently Charlton updated his friends, family and social media followers on how things are going post-transplant. Here is the list of accomplishments he shared:

I set the hospital record for getting listed, transplanted and discharged.

I got out of ICU in one day.

I do not cough or get out of breath now.

I do not have to do breathing treatments anymore.

I am very thankful for my donor and continue to pray for his/her family.

“It is overwhelming to hear the word ‘transplant’ but even more overwhelming to learn about the related expenses. From the moment we learned about the Children’s Organ Transplant Association (COTA) and reached out prior to our son’s transplant, we were instantly set at ease. COTA is more like a family than an organization. COTA does not simply assist with transplant-related expenses, they give peace of mind. And to a family in crisis, that gift is priceless! It is hard to describe the reassurance in knowing COTA will be there for Charlton

… for a lifetime,”

Charla said.

“COTA allows us to breathe easier every day because we do not have to focus on the financial aspects of Charlton’s disease and treatment, but can enjoy the journey of healing,”

she said.

Charlton continues to thrive in every aspect. At his ten month post-transplant follow-up appointment, the doctors told him he was doing so well he did not need to come back until his one-year checkup. He never coughs any more, and he is currently at his heaviest weight. Charlton is eating well, working out at least three times a week and overall feeling great. He goes to work every day and is very active doing the things he enjoys, which include hiking, fishing, snowboarding, rock climbing, traveling, going to concerts, hanging out with friends and family, and actively participating in his church. Charlton is living life to the fullest and is now planning for a bright future — something he was previously reluctant to do.

Mom Charla reflected, “Looking back at pictures from last year at this time, it is very humbling to realize how low he actually was and now how far he has come. This lung transplant has truly been a life-saving gift in so many ways, and COTA has been there through every step of the process. We now understand why a transplant anniversary is celebrated.”